ACCORD is a EU Joint Action - Achieving Comprehensive Coordination in Organ Donation (ACCORD) - which seeks to strengthen the full potential of the Member States participating in the study, to improve the cooperation between them and to contribute to the effective implementation of the EU Directive 2010/53/EU and the Action Plan on Organ Donation and Transplantation.
The coordination of the overall ACCORD Joint Action was led by the Organizacion Nacional de Trasplantes (ONT) in Spain, who provides oversight and support to the 23 participating EU countries. There are also 9 Collaborating partners, including: the World Health Organisation, the European Directorate for the Quality of medicines and Healthcare, the European Hospital and healthcare federation (HOPE), European Society of Intensive Care Medicine (ESICM) and the European Transplant Coordinators Organizations-European Donation Committee (ETCO-EDC).
ACCORD comprises of three key work packages:
- WP4 - Developing Live Donor registries and fostering international data sharing on live organ donation across the EU led by Nederlandse Transplantatie Stichting (Netherlands)
- WP5 - Increasing the availability of organs from deceased donors by strengthening the cooperation between Intensive care units (ICUs) and Donor transplant Coordinators (DTCs) led by NHS Blood and Transplant (UK)
- WP6 - Promoting international exchange of best practices and consolidated expertise in organ donation and transplantation through twinnings led by Agence de le Biomedicine (France)
The overall aim of the UK led ACCORD (WP) 5 is to increase the availability of organs from deceased donors by strengthening the cooperation between ICUs and DTCs.
The specific aims of the WP5 project were:
- Part 1. To describe the usual end-of-life care pathways applied to patients who die as a result of a devastating brain injury in Europe, and to explore their impact on the potential for donation, and on the realization of the deceased donation process.
- Part 2. To develop and prove by implementation an acceptable and effective rapid improvement toolkit to try and overcome some of the barriers to organ donation.
Fourteen EU Member States (MS) participated in the UK led Work Package: Croatia, Estonia, France, Germany, Greece, Hungary, Ireland, Italy, Latvia, Lithuania, Netherlands, Portugal, Slovenia and Spain.
The UK also participated to the work of WP4 which was led by the Netherlands. The objective of WP4 of the ACCORD project is 'to improve MS information systems on live organ donation through the provision of recommendations on the design and management of structured live donor registries and through setting down a model for supranational data sharing'.
More information about ACCORD can be found at http://www.accord-ja.eu/Next section: Information for Patients